The event grossed over $4.6 million over the past decade to find a cure for Duchenne muscular dystrophy
NEWPORT BEACH, Calif., July 19, 2022 /PRNewswire/ — CureDuchenne, a leading global nonprofit focused on finding and funding a cure for Duchenne muscular dystrophy, will partner with retired NHL star and captain Anaheim Ducks Ryan Getzlaf for the 11th Annual Getzlaf Golf Shootout at Monarch Beach Golf Links on friday september 9 and Saturday, September 10, 2022. Hosted by Ryan Getzlaf and his wife Paige, the annual Getzlaf Golf Shootout brings together professional athletes, celebrities and community leaders for a two-day experience that includes an MVP dinner followed by a jam-packed day of activities and golf at the beautiful Monarch Beach Golf Links at Dana Point, California.
“Duchenne is a devastating disease that is shortening the lives of thousands of people around the world,” said Ryan Getzlaf. “Paige and I joined the cause to help find a cure 11 years ago, but we never imagined what this tournament could become. CureDuchenne has had a huge impact, investing in promising science that brings us even closer plus the needle of a cure every day, and I’m proud of what we’ve accomplished together over the past decade.”
2007 NHL All-Star and Stanley Cup Champion Ryan Getzlaf played a remarkable 17-year career for the Anaheim Ducks, holding the franchise’s all-time leading scorer record and serving as team captain for the past 11 years. Over the past 10 years, Ryan and his wife Paige have raised over $4.6 million at the Getzlaf Golf Shootout to fund early-stage research and bring new therapies for Duchenne Muscular Dystrophy.
Duchenne muscular dystrophy, the most common and severe form of muscular dystrophy, is a fatal genetic disorder affecting approximately 1 in 5,000 male births. People with Duchenne are usually diagnosed as toddlers, lose the ability to walk in their early teens and often succumb to the disease in their mid-twenties. Since the creation of CureDuchenne in 2003, the association has collected more than $50 million for research and to develop impactful programs that help families living with Duchenne, and has funded 16 research projects that have progressed to human clinical trials.
“We are extremely grateful to the Getzlafs for their continued commitment to CureDuchenne for over a decade. The funds raised during the Getzlaf Golf Shootout have been essential in our quest to find a cure for Duchenne,” said Debra Miller, founder and CEO of CureDuchenne. “We won’t rest until there’s a cure, and every dollar raised and invested in early-stage science brings us one step closer.”
The event starts friday september 9e with select sponsors and members of the Anaheim Ducks for an MVP dinner and live auction. The next day will begin with breakfast, followed by a shotgun start golf tournament, with games and activities along the course. Golf foursomes will be paired with a celebrity for a day on the links and compete in contests, luxury giveaways and more.
This year’s sponsors include Porsche, FR Construction, WHGC PLC, Air Control Systems, Ameriprise Financial, Wayne Farms, Ayres Hotels, Ayres Construction Company, Central Coast Disc Golf and Independent Capital Management, Inc. For more sponsor information , tickets and event details, visit: www.cureduchenne.org/getzlafgolf. Famous former participants include Corey Perry, Teemu Selanne, Donovan Carter, Keenan Allen, Richard Burgi, Chuck Finley, Garrett Anderson, Frederic Andersen, Bruce Boudreau, Scott Neidermayer and Brian Van Holt.
CureDuchenne is recognized as a world leader in research, patient care and innovation to improve and extend the lives of people with Duchenne muscular dystrophy. As the leading genetic killer of young boys, Duchenne affects more than 300,000 people alive today. CureDuchenne is dedicated to finding and funding a cure for Duchenne by breaking the traditional charitable mold through an innovative model of venture philanthropy that funds groundbreaking research, early diagnosis and community education. For more information on how to help raise awareness and funds needed for research, please visit www.cureduchenne.org.